My Favorite Endometriosis Influencers

Disclaimer: This post was sponsored by Intellifluence, a social platform that matches brands and influencers for paid and unpaid marketing campaigns. A huge thank you to Intellifluence for supporting Endo Strong!

Endometriosis is lonely. When I was in high school, one of my best friends had endometriosis — but I didn’t know I also had it until many years later. Likewise, in college, one of my friends also had endo, but I didn’t learn that she had it until after I had already moved to Cleveland.

In terms of people I could talk to about my endo, I felt utterly alone. David, my mom, and my friends were, and continue to be, supportive, but they just couldn’t “get it” the way another person with endometriosis could. That’s one of the reasons why I’ve been so public about my experiences with chronic illness. Even before I had a diagnosis, I knew I wanted others in my boat to be able to look up to me and see someone just like them.

To me, this is the power of influencers in today’s media. I didn’t go into social media marketing as a career because I wanted to promote an image of perfection or help rich, white models make even more money. I chose this path because I felt passionate about supporting people and brands with a mission to help others feel less alone.

Social media is a powerful tool that allows us to connect with people all over the world. In my own experience, this has meant being able to share my endo story with people I never would have met in real life, and commisserating over shared experiences with them when I didn’t know anyone IRL who could relate. For this reason, I am so excited to partner up with Intellifluence on this sponsored blog post!

Intellifluence is an online platform that matches influencers with campaigns through their digital “marketplace.” Influencers who are accepted to Intellifluence can apply for campaigns with brands, including paid campaigns and campaigns in exchange for free product. Belonging to Intellifluence has offered me the opportunity to make money doing what I love: raising awareness for others with endometriosis, especially those who don’t know that what they’re experiencing isn’t normal.

Being an endo influencer has also allowed me to virtually “meet” so many other incredible advocates who are speaking up about their experiences with this painful disease. So, when Intellifluence reached out to me about this sponsored post re: influencer marketing, I knew I wanted to use it to shine a spotlight on all the other incredible influencers who are doing amazing things in the endometriosis space.

The following influencers are by no means an exhaustive list of all the awesome people speaking out online about endometriosis, but they are some of my favorites. I have had the opportunity to speak to many of them online. Not only have I found their content unbelievably helpful during this trying journey toward my ultimate goal of excision surgery for endo, but I can also attest that they are genuinely wonderful people.

So, without further ado, here are some of my favorite influencers in the endometriosis space today, and more about all the incredible things they are doing for endo awareness on social media!

@endometriosisenlightened

Erika, the influencer behind @endometriosisenlightened, is on a mission to share her journey in a positive and informative way to help others with endo find their tribe. She advocates for everything from informed consent, to excision surgery, to an anti-inflammatory diet, all while sharing tidbits of her own journey with endo. Her content is both beautiful and inspiring, and I highly recommend that you check her out!

@miss.misdiagnosis

Mady created @miss.misdiagnosis along with the hashtag #bloatedandbeautiful to raise awareness for endo and a number of other chronic health conditions. She is a great resource for anyone who struggles with multiple chronic diseases in addition to their endometriosis. Much of her content focuses on shedding the stigma around endo and chronic pain conditions — for example, she also has fibromyalgia and talks openly about needing to use a mobility aid sometimes.

@endo_black

Created by Lauren Renee, Endo Black is a community for African-American women and other women of color who are affected by endometriosis. I feel it is so important that Endo Black has created this space to talk about struggles specific to the Black community that struggles with endo. Lately, Lauren has been sharing some really interesting content detailing the disparities in healthcare faced by African-American women living in the United States.

@entirelyendo

25-year-old Abi has already been through so much in her endometriosis journey, including two laparoscopic surgeries! I love that she is candid about her struggles with chronic pain due to endo and shares helpful tips and tricks she uses to manage it in her everyday life. Especially if you are based in the U.K., Abi is definitely one of the endometriosis influencers you should watch.

@itsasophslife

Soph identifies as a chronic illness warrior who struggles with both endometriosis and chronic fatigue syndrome (ME/CFS). My favorite thing about Soph’s content is how positive she stays despite her challenges with chronic illness. Her posts stress the importance of things like gratitude and self-care, and recently, how they relate to our “new normal” living in lockdown due to COVID-19.

@britneeleysen

Britnee’s account shows that it’s totally possible to not only survive, but also THRIVE with endometriosis! She is earning her PhD and doing some great advocacy for Black Lives Matter, all while making YouTube videos and posting about her endo on Instagram. I don’t know how she finds the time for it all, but I certainly find it inspiring to follow along on her journey.

@endo_hope_

Hope is something we could all use a little more of on our endo journeys — and Philippa is here to bring it to you. In addition to being a model and advocate, Philippa founded the Endo Hope support group to create community around endometriosis. On her page, she shares facts and stats to raise awareness for endo, as well as natural health insights that have helped her throughout her journey.

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