Health Update: Cleveland Clinic’s Center for Endometriosis & Chronic Pelvic Pain

Wow, what a whirlwind today has been! Today (as of writing this post), I just got home from an appointment at Cleveland Clinic’s Center for Endometriosis & Chronic Pelvic Pain. Finally, I feel like I’ve found answers after nearly two years of searching for them.

If you’ve been following my blog for awhile, you know that originally I was diagnosed with IBS. Yet something didn’t quite sit right with me about that diagnosis: I was eating low-FODMAP and doing everything right, but was still having symptoms. Plus, my symptoms worsened around my period.

Then I thought back on my history of painful periods and started to do some research into endometriosis. Every story I read from a woman with endo resonated with me, from having your pain dismissed to feeling like you’d tried everything to no avail. So, I made an appointment at the Cleveland Clinic Center for Endometriosis & Chronic Pelvic Pain here in Cleveland, where I met with Dr. Jessica Strasburg about my pain.

I have never felt more heard than when I stepped into the Center for Endometriosis & Chronic Pelvic Pain. After years of pain and suffering, Dr. Strasburg affirmed my suspicion of endometriosis. Here’s how my appointment went, and what’s next for me on my health journey as a woman with suspected endometriosis.

How My Appointment Went

My appointment at the Cleveland Clinic Center for Endometriosis and Chronic Pelvic Pain began the way most appointments do: with a weigh-in, a blood pressure check and a lot of questions from the nurse on duty. Then, I was asked to undress from the waist-down (like at any gynecologist appointment) and met with Dr. Strasburg.

Unlike most of the doctors I’ve had, Dr. Strasburg spent about an hour with me asking questions and examining my body. We talked about my history of painful periods and my newly-onset acute pelvic pain. Then, she did an abdominal and pelvic exam, which was painful, but incredibly informative.

After all that, Dr. Strasburg concluded that I was probably right: I probably do have endometriosis on the back wall of my uterus and bowel. In addition, I also have a pelvic floor dysfunction and vulvodynia, which have compounded my pain and made it even more difficult to overcome.

What’s Next for Me

According to my doctor, diagnostic laparoscopy is in my future — but whether that will be my immediate future is up to me. As of right now, I do think I want to have the diagnostic laparoscopy because it is minimally invasive and will provide me the answers I’ve wanted for so long now. To me, peace of mind and reduced pain for years to come is well worth a few one-inch scars.

But before we can get to that, I’ll have to have an MRI at Cleveland Clinic’s Main Campus (at this point, nothing I’m not used to). As long as it’s covered by my insurance, I’ll have the MRI because the contrast may show some of my endometriosis on-screen.

I’ll also be visiting Cleveland Clinic’s specialized physical therapy clinic for pelvic pain to work on my pelvic floor dysfunction. According to Dr. Strasburg, some women still have pain even when their endo is removed because their pelvic floor is still guarding (a.k.a. tensing up to protect itself). So, I will need to start PT exercises in order to work on my chronic pelvic pain and vulvodynia.

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